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What is it like to be a man with osteoporosis?

Tom: Age 62

I found out that I had osteoporosis when I broke some ribs by coughing. I was just sitting in a chair when it happened. I knew something was wrong from the pain. I went to see my doctor for something else and mentioned the pain in my ribs. He sent me to a specialist for a series of tests, including a bone density test, and osteoporosis was diagnosed.

I've tried to think of the reason that I might have osteoporosis. It's in my family - my grandmother had it - and I'm also slight, so my bones are relatively small. Other than that, I've always loved to exercise and I've tried hard to watch my diet.

Naturally, I wish I didn't have this darned disease. I was only in my early 50s when I was diagnosed - too young to be thinking about it. I injured myself playing golf awhile back - did something to my hip- and I know if I'd been healthy that wouldn't even have bothered me.

I've joined a support group that is mostly women. I'd like to see more men come out to it. I think we're going to see a lot more men with osteoporosis as the population ages. We need even more research and more literature about men with osteoporosis.

Ernie: Age 70

I wasn't quite 50 when I fell and injured my back. After a few days of excruciating pain, I went to the doctor who took X-rays. When he phoned me to tell me that I had osteoporosis, I was stunned. He showed me some sample bones - one with osteoporosis and one without. I had a hard time believing that my bones could look like that. I had a bone density test that showed I had lost 35 per cent of my bone density.

I looked back at my life to see if I could determine the cause of my osteoporosis. I know that my mother had osteoporosis. I was also extremely slight as a young man - I was 6' 3" and throughout my 20s weighed no more than 120 pounds. I also developed a hyperactive thyroid later in my life and had to take thyroid medication for that condition.

I have been on calcium and vitamin D supplements since I was diagnosed and I look after myself. My bone density tests indicate that my bone density is improving, although I have lost several inches in my height over the years. I attend a support group, which I find helpful - it's hard to get information and understanding from others if you don't belong to some kind of group. I've had to restrict my life somewhat - I'm much more aware now and I don't take the risks that I used to. I'm encouraged by the fact that my bone density is improving - it shows that you can make progress in controlling this disease.

Tom and Ernie: Some Conclusions

Neither Tom nor Ernie knows for sure why he has osteoporosis. Men often believe that osteoporosis is a woman's disease. It is not just a disease of the elderly: Tom and Ernie were both relatively young when they were diagnosed with osteoporosis. Both men and women must pay attention to their bone health -- at all ages.

Tom and Ernie's stories also point out the need for men living with osteoporosis to find support and first-hand information from others coping with the same situation. Finding help from others has been proven to reduce the emotional stress facing someone who lives with a chronic disease. If an osteoporosis support group exists in your community, you might wish to join it. As Tom and Ernie have suggested, there is no reason why such groups should be made up only of women.

Learn more about men and osteoporosis :